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Congenital Erythropoietic Porphyria - 25 Studies Found

Status Study
Recruiting Study Name: Controlled Trial of Panhematin in Treatment of Acute Attacks of Porphyria
Condition: Acute Porphyrias
Date: 2014-06-25
Interventions:
  • Biological: Panhematin
  • Other: Placebo
Completed Study Name: Observational Study of Acute Intermittent Porphyria Patients
Condition: Acute Intermittent Porphyria
Date: 2014-02-27
Recruiting Study Name: Longitudinal Study of the Porphyrias
Condition:
  • Acute Porphyrias
  • Cutaneous Porphyrias Date: 2012-02-13
Recruiting Study Name: A Phase 1 Study of ALN-AS1 in Patients With Acute Intermittent Porphyria (AIP)
Condition: Acute Intermittent Porphyria
Date: 2015-05-19
Interventions:
  • Drug: ALN-AS1 Single or multip
Recruiting Study Name: Hydroxychloroquine and Phlebotomy for Treating Porphyria Cutanea Tarda
Condition: Porphyria Cutanea Tarda
Date: 2012-04-05
Interventions:
  • Drug: Hydroxychloroquine 100 m
Completed Study Name: Phase I Gene Therapy Clinical Trial Using the Vector rAAV2/5-PBGD for the Treatment of Acute Intermittent Porphyria
Condition: Acute Intermittent Porphyria
Date: 2014-02-28
Interventions:
  • Genetic: rAAV2/5-PBGD vector dosage 1

Enrolling by invitation Study Name: A Study to Evaluate Long-term Safety and Clinical Activity of ALN-AS1 in Patient With Acute Intermittent Porphyria (AIP)
Condition: Acute Intermittent Porphyria
Date: 2016-10-28
Interventions: Drug: ALN-AS1 ALN-AS1 by subcutaneous (SC) injection
Completed Study Name: Risk Factors of Porphyria Cutanea Tarda (PCT)
Condition: Porphyria Cutanea Tarda
Date: 2005-09-13
Completed Study Name: Pilot Trial of Deferasirox in the Treatment of Porphyria Cutanea Tarda
Condition: Porphyria Cutanea Tarda
Date: 2008-01-10
Interventions: Drug: Deferasirox 250 mg of deferasirox once daily for 6 months
Not yet recruiting Study Name: Dental Health, Diet, Inflammation and Biomarkers in Patients With Acute Intermittent Porphyria(AIP)
Condition: Acute Intermittent Porphyria
Date: 2012-06-05
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